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in relation to medical research and the role of ethics committees"

Data Protection - Bibliography

Data Protection Law

  • Bainbridge, D. Data Protection Act & Privacy in Communications. (S1: EMIS, 2000).
  • Carey, Peter. Blackstone's guide to the Data Protection Act 1998 (London: Blackstone's Press, 1998).
  • Carey, Peter. Data Protection in the UK (London: Blackstone's Press, 2000)
  • Cook, Trevor. Protection of regulatory data in the pharmaceuticals and other industry. (London: Sweet & Maxwell, 1999).
  • Council of Europe. The protection of medical data (Strasbourg: Council of Europe, 1997).
  • Dierks C. Legal and social implications of health telematics in the EU Stud Health Technol. Inform. 2003; 96:143-8.
  • Engelschion, S.. The Implementation of Directive 95/46/EC in Norway, Especially with Regard to Medical Data European Journal of Health Law 2002; Vol.9 No.3 p.189
  • Egelsem, Dag. The structure of rights in Directive 95/46/EC on the protection of individuals with regard to the processing of personal data and the free movement of such Data Ethics and IT 1999 – Vol. 1 Issue 4, 283
  • European Communities. Online services and data protection and the protection of privacy (Luxembourg: European Communities, 1999).
  • European Commission. Data Protection: Special Eurobarometer Report into Public Attitudes Relating to Privacy and Information Brussels: 2003
  • ILO. Protection of workers' personal data. (Geneva: ILO, 1997)
  • Hornberger (et al.) Security and data protection for SAP systems. (London: Pearsonworkings, 2001)
  • Jay, Rosemary & Angus Hamilton. Data protection - law & practice (London: Sweet & Maxwell, 1999)
  • Cullen International s.a. A business guide to change in European data protection legislation. (Dordrecht: Kluwer, 1998)
  • Lloyd, I. A guide to the Data Protection Act 1998 (London: Butterworths Tolley, 1998).
  • Millard, C. & M. Ford. Data Protection laws of the world (London: Sweet & Maxwell, 1998).
  • Politt, P.L, J. Mullock & O. Clarke. The point of law: Data Protection Act explained (London: SO, 2000).
  • Reidenberg, J.R. & P. Schwartz. Data privacy law: a study of United States data protection (Michie:NATL Press, 1996)
  • Robling, M.R. Hood, K., Houston, H., Pill, R., Fay, J., and Evans, H.M.. Public attitudes towards the use of primary care patient record data in medical research without consent: a qualitative study J Med Ethics 2004; 30:104-109
  • Roth, P (et al.) The global encyclopaedia of Data Protection Regulation (The Hague: Kluwer, 2000).
  • Carey, P. E-Privacy and online data protection (London: Butterworths Tolley, 2002) - Hardback CD-ROM.
  • Salbu, Steven R. The European Union Data Privacy Directive and international relations Vanderbilt Journal of Transnational Law; March 1, 2002
  • Singleton, Susan. Data protection: the new law (Bristol: Jordans, 1998).
  • Singleton, Susan. Data protection handbook (London: Tolley Publishing, 2001).
  • Singer EA, Müller M. . Implications of the EU directive on clinical trials for emergency medicine. BMJ 2002; 324:169-70.
  • Strobl, Judith, Cave, Emma and Walley, Tom. Data protection legislation: interpretation and barriers to research BMJ, Oct 2000; 321: 890–892

Genetics

  • Laurie, Graham T. 2002. "Genetic Privacy: A challenge to medico-legal paradigms" Cambridge, Cambridge University Press.
  • Annas, George J and Roche, Patricia A. 2001. "Protecting Genetic Privacy" Nature Review: Genetics (2001)2: 392.